DISQUS

AMERICAblog: Who do you side with? The parents or the state?

  • Bluestocking · 7 months ago
    And cancer treatments can be awfully vicious. They can also sometimes be more than what was needed, or so I hear.

    *********************************************

    With all due respect, John...have you ever been face-to-face with someone in the final throes of cancer? I have...and let me tell you, in many cases, that's hardly a day at the beach either. Many cancer patients die relatively peacefully...but this is usually only because they're being heavily sedated around the clock towards the end, because otherwise they would be in agony. My grandmother was one of the strongest and toughest women I ever knew, something of a battleaxe to tell the truth -- and yet, a few days before she died from lung cancer, something suddenly went wrong with the delivery of her sedation and it was clear to everyone in the room within a very short period of time that she was in great pain. There's no question that radiation and chemotherapy are no joke -- but I think one of the reasons why some physicians might be inclined to deliver more than seems necessary is the fact that some types of cancer recur if they're not eradicated completely the first time around. That's why oncologists don't consider someone cured or cancer-free until five years have passed following treatment -- because they might not be.

    Personally, I think that parents should have some right to decline medical treatment for a seriously ill child when it become clear that heroic measures would be necessary and/or that the chances of recovery are low -- however, this is not the case here. By refusing their child scientifically-proven medical treatment with such a high probability of success when the possibility of survival without treatment is reportedly almost nonexistent, these parents are in my own opinion staking their child's life on what amounts to a throw of the dice. What is more, the fact that these parents refused the cancer treatment in favor of faith healing leaves room for doubt that they will permit the child to be sedated if the child should become terminal and be in pain -- and if they would refuse, I would consider that to be child abuse since they would be knowingly permitting their child to suffer.
  • Ruttle · 7 months ago
    I can't believe this is a serious discussion. The rights accorded religion in the United States have gone so far overboard that we are debating whether or not a child should have treatment that could, and very likely would save his life. These parents should be arrested and thrown in prison for many years if this child dies because they left it up to their imaginary sky-friend to heal him. I am all out of respect for religion. I am fed up. If this child dies then the guilt lies not only with his parents, but all the people who stood up for these parents who helped murder their child.
  • DavidinPS · 7 months ago
    Thank you for re-injecting some sanity into the discussion.
  • Harper · 7 months ago
    What if they very simply can't afford the treatment? I'm thinking it would be the prohibitive cost of cancer treatment, and the government's unwillingness to do anything about it, that killed their kid.
  • Ruttle · 7 months ago
    They have not indicated any such concern. They are basing and defending their decision on their religion. Don't make excuses for them. They are actively choosing death for their child. The child should be removed from that home.
  • Harper · 7 months ago
    Yes, it does seem like they'd say so if money as the issue.
  • catdance · 7 months ago
    Bottom line: There is a 90 % chance the child can be (or could have been) cured if treated in the medically appropriate manner. To deny him treatment is essentially murder.

    Prisons are full of people who claim God told them to kill people. They don't get a pass because of the voices in their heads. These parents shouldn't either.
  • Harper · 7 months ago
    Or, it could be that they have four other kids to feed and the expense of a cancer regimen would put them all in the streets.
  • Jophus · 7 months ago
    You'd let you child die because of money? That's disgusting. This isn't the Grapes of Wrath, you get treatment if you need it now.
  • Harper · 7 months ago
    For some people, it IS the Grapes of Wrath. And some institutions won't treat people who don't have the cash. What country have YOU been living in?
  • Jophus · 7 months ago
    I don't know if you read GoW, but I wasn't referring to the overall state of the economy. Of course it is always that bad for someone. I was talking about people dying in the gutter because a hospital refused to treat them.

    This kid would have been treated. There would have been no reason to go to the judge otherwise. I'm saying I value a living child more than arbitrary pieces of paper and that this kid had that treatment available to him (meaning it owuld have been paid for) and his parents said no. I don't think parents should have the last word in that situation. I see you are turning personal so I'll end it with, we agree to disagree, friend.
  • Harper · 7 months ago
    We don't disagree. I brought in the burr under my butt when there was no evidence it was applicable. (Besides, Congress passed SCHIP, I think). I agree that if they COULD treat the kid, they SHOULD.
  • Bette Porter · 7 months ago
    Cancer sucks, period! My partner is going through treatment for locally advanced breast cancer - mastectomy, several rounds of different chemo drugs, radiation, clinical trials, etc. She wants to live. She has a 12-year-old daughter she needs to be here for.

    Chemo drugs can do awful things to the body as they kill the cancer cells, BUT right now they provide the best chance of curing the cancer. If this kid has a chance to live, he needs to have the treatment, regardless of the parent's wishes. Isn't that what being pro life is all about?

    If it were a case where chemo would just postpone the inevitable by a few months, then I'd say it's up to the parents to help him have the best possible quality of life for the short time he'd have left. In the case, they may be right to refuse chemo.

    It sounds as if this kid has a chance to live. The state was right to intervene. Let's just pray that it's not too late for him.
  • ndtovent · 7 months ago
    Absolutely! Couldn't have said it better myself. With Hodgkins disease, it IS curable with chemotherapy. It's one of the diseases which has a high cure rate, IF they start treatment early enough. As a hodgkins survivor myself, I know this to be fact. I did a lot of research on it before I started treatment. I absolutely think that the state should intervene in this case...

    Even though I think the kid should have a say, although as one other commentor says, he's been brainwashed by his parents/religious teachings, and his choice would be skewed. I think that the parents could be brought up on charges of abuse for not allowing the treatment.
  • Scottsdalian · 7 months ago
    But is that enough justification for the state to intervene?

    Yes it is.

    We the People, thru our governments both Fed & State, have a duty and responsibility to help those who cannot help themselves. This kid is one of those people.

    He cannot make this choice, as he is torn between his crazy-assed parents and reality.

    Treat his parents as what they are - retarded (in the medical sense) adults unable to make proper life/death choices for their children.

    We can't save these adults from themselves, but as a society we have an obligation to help those who are unable to protect themselves.

    As another commenter said, if their was little chance of survival, then let the family decide -- but if this child's life can be saved, the State MUST intervene.

    It's what seperates humans from animals.
  • DavidinPS · 7 months ago
    So who here thinks that if two parents were withholding food from their child, or had him locked in a closet because of religious beliefs, that the state has no business stepping in?

    How about if they were beating him regularly because of their religious beliefs?
  • renegademom · 7 months ago
    this one is a no-brainer.

    As a parent, I would not want my decisions, or my children, politicized. AND, this is a no-brainer. Treat the child. he is THIRTEEN. My god.
  • mtiffany · 7 months ago
    "Ever since I was a kid, I've sided against the parents on these things. I still do."

    Please pardon my not so humble pronouncement, but in my opinion it is framing this and similar issues in terms of "rights of the parents or family versus coercive power of the state in serving a societal interest" rather than framing it as making a choice between science and superstition that leads to this sort of sad ridiculousness.
  • nohfuling · 7 months ago
    Actually, it could be framed even simpler: The real question is one of ownership - who "owns" the life of the child, the parents or the state?

    (I would say the child, but in our society, a minor isn't allowed to own anything, not even his/her own life.)
  • Mike_in_the_Tundra · 7 months ago
    I had an aunt who decided to go with alternative treatments for her cancer. I was one of the pallbearers.
  • SCLiberal · 7 months ago
    I stood by my late husband when he chose chemotherapy, radiation and surgery. I myself would not choose any of it.
  • Mike_in_the_Tundra · 7 months ago
    I chose surgery and chemo. That was ten years ago. I was fortunate, because I've been clear ever since.
  • Indigo · 7 months ago
    Anyone who spins a happy ending to a cancer treatment hasn't seen a cancer treatment. I know, I know . . . a 90% recovery chance . . . maybe . . . if you cooperate . . . and can afford it . . . and it works . . . this time . . . just say no. There's worse things than death. Voting Republican comes to mind but I'm sure there's other things as well.
  • Tatts · 7 months ago
    "There are worse things than death."
    That's just stupid, and there's no other way to say it. Any of life that we get to experience is better than death, at which point we cease to experience anything.
    That's also why I started to post in this discussion, based on John's sentence, "And cancer treatments can be awfully vicious." More vicious than everlasting death? Doubt it. A year or two of chemo and a long life vs. dead by 15. No choice.
    A friend of mine is thought to be the first person ever cured of non-Hodgkins Lymphoma, which cropped up at about this boy's age. He had a relapse in college and to this day has periodic problems with adhesions in his intestines (from the radiation), but he's healthy, in great shape, and having a blast. And he's had 35 years that he wouldn't have had without the nasty treatments.
    This kid needs to be saved from his parents.
  • spyder · 7 months ago
    "Any of life that we get to experience is better than death, at which point we cease to experience anything." How do you know? Have you previously been dead?
  • blues2 · 7 months ago
    I have, I have!

    And it's boring as hell....
  • Indigo · 7 months ago
    Self-righteousness imposed on others is much worse.
  • Rocco Boma · 7 months ago
    Not to be flippant, but isn't this just natural selection at work in the 24 hour news cycle? This is how people die if they have no insurance; this is how they die when they are poor; this is how they die when they believe in gods.
  • MattFromChitown · 7 months ago
    My 13 year old niece wrote a paper comparing Obama to Hitler because of what she's heard her father (not my brother) and his asshat friends say about the president. When I presented her with facts, she wasn't able to process the information and kept telling me what her dad had told her.

    It's been shown that areas of the brain necessary for truly critical thinking don't develop until late teens. Can we really expect a 13 year old boy to understand the benefits and risks of both scenarios and then weigh them properly?

    Sure, we want to encourage children to make decisions because that's how they learn, but this isn't a decision between saving their allowance and buying that new cool game. If he makes a bad decision, there's no going back from this one.

    I side with the state.
  • cmpnwtr · 7 months ago
    As a parent who has been in that situation, deciding for my toddler son who, in the end, died from the effects of chemotherapy, I side with the state. Nearly every parent wants to spare their child the suffering from chemotherapy. But the scientific truth is, it is the best chance for the child. And it is the interest of the state to protect the life of the child, not parental prerogative.
  • kvetch · 7 months ago
    Type your comment here.
    This is a slam dunk. The parents are religious and therefore, ipso facto, are crazy, as they believe in silliness, fairy tales, invisibility, infallibility, the value of cosmic begging and fear science and choose not to understand the wonders of the 21st century.
  • greenleegazette · 7 months ago
    I totally agree. I'm tired of being told that "religion" gives people the right to withhold medical treatment for their kids, or the right to discriminate openly against gay people, for that matter.

    Why does believing in a set of superstitions give you special rights? I know that the Constitution says that the government can't curtail a person's rights based on their religion, but a kid has had religion imposed on them, right?

    What if their religion said it's OK to beat the kid with a rod so as not to spoil him? Oh, right. . .
  • DavidF · 7 months ago
    I read somewhere that the single treatment the boy had shrank his tumor a bit, so I don't understand the boy and his parents wanting to stop the chemotherapy.

    I realize how unpleasant chemo is. I've been there myself. But, it totally eradicated my tumors when I was sick with Hodgkin's Disease.

    It just seems foolhardy at this point to choose "alternative medicines."
  • Butch1 · 7 months ago
    This is what bothered me. They refuse "traditional medicine," e.g. allopathic medicine, because of religious beliefs, yet, they have no problem with their religious sanctions of "alternative therapies," only? Something smells mighty fishy in this scenario. They need to step aside and let the boy be cured. Hodgkin's Lymphoma, as you well know, can be cured through chemotherapy.

    There is room certainly for alternative therapies and I am not saying that they are all ineffective, but certain diseases require agressive therapies to stop the progression of the disease. I do not know of any present phycopharmaceuticals that have these types of properties.
  • Alexaii · 7 months ago
    90% chance of survival? This is a no-brainer.
    The parents are idiots. I'm glad the state is stepping in.
  • matty · 7 months ago
    My dad has been fighting cancer for two years with both chemo and radiation. It's been an up and downhill battle, with the latest experimental treatment really making a difference. Even if he were to die tomorrow, it's given him that extra couple of years with my mom. For that, I'm glad he decided to go through the treatments.

    But HE decided. Not us.

    That's easy for an adult to do, but when it comes to a child, the adult needs to make the decision. In this case, the parent is the one who has the right to make that decision. Right or wrong, it's their decision to make. Not the state's.

    But then again, a potential 90% success rate? I guess I'd have to hear more details, such as 'did the family get a second or third opinion?'. It makes me wonder what I'll choose to do for myself when my time comes... I've watched more than one person die of cancer (colon cancer, lung cancer, etc....), and they all fight a valiant fight - but eventually they all die. Maybe I'd rather just bow out gracefully.
  • dacnova · 7 months ago
    I have a nephew who had the same cancer when he was 2. He's now a senior in college thanks to the treatment these parents are refusing. With the high success rate, trying alternative treatment is child abuse. Of course the state must take custody and treat this kid.
  • Michelle Allen · 7 months ago
    DavidinPS is right. The state would (rightly) intervene if the parents were beating or starving the kid in the name of jesus. This situation is child abuse. If the parents want to refuse medical treatment for themselves that is one thing, but the state is oblgated to step in for the child.
  • tbhull · 7 months ago
    The parents in all their fundie stupidity.
  • swellsman · 7 months ago
    The kid's 13? Don't we try 13 year old kids as adults in this country? (Well, in at least certain of the more backwards-ass parts of the country).

    Let the kid decide. He'll probably get it wrong -- his parents will have had a huge warping effect on him -- but why is this a dispute between the state and the parents? Lay the options, odds, likely pain out for the kid ("Look. It's going to be really painful. It might not work. But if you don't do this -- no matter what your parents say -- you will certainly die.") and let him make the call.

    If the values set forth in the Bill of Rights (and particularly the First Amendment) stand for anything they stand for the proposition that everyone has the right to decide their own conscience. I don't know why, when it comes to life and death decisions, we think that this doesn't apply to minors as well.
  • DavidinPS · 7 months ago
    What about if the kid were five years old? Four? Two?
  • Joelle · 7 months ago
    Even at 5, the child should be able to speak about what he wants. I don't think the child's word should be the only deciding factor at 5, or even at 13, but the child should be given the opportunity to be heard. A trained, independent child psychologist should be able to give an informed opinion about the extent to which the child understands or does not understand how sick he is, the extent to which he is or is not developmentally capable of making an informed choice, the extent to which he is or is not able to hold opinions that differ from those of his parents, etc. I disagree that we should let the kid make the call all by himself, but I do think his input should be solicited and should be given weight proportionate to his apparent emotional and psychological maturity, as evaluated by an independent expert third party.
  • Jophus · 7 months ago
    I'm sure his parents, doctors, judges have heard his opinion, just not the media fortunately.
  • Goober Peas · 7 months ago
    Much like Terry Schiavo, I don't think the state has any place in making medical decisions for citizens. This is a heartbreaking decision on the part of the parents but state and medicine don't mix.
  • tbhull · 7 months ago
    Correct.
  • Donna Q · 7 months ago
    Incorrect. This is a terrible analogy. We are talking about a perfectly sentient 13-year-old boy, not someone who has been in a persistent vegetative state for decades. This child has a chance, and a statistically very good one. Terry Schiavo had no chance at a normal life, and not even her so-called defenders were arguing that she did. This is not an end-of-life decision. This is a beginning-of-life decision that you are prepared to leave in the hands of fools.
  • tbhull · 7 months ago
    My "correct" was that the state has no place making medical decisions contrary to the individual. I agree the Schiavo analogy is not spot on, but the statement that government should have no say in medical decisions that trump personal medical decisions of these parents is sould and absolutely correct.

    I would have no problem with the child having a say over the parents, but the government cannot speak for the child or make medical decisions requiring an affirmative act that are contrary to the parents' decisions.

    Freedom has consequences. However unfavorable one may view the consequences of freedom in letting the parents decise in this case, the outcome is nowhere the absolute horror of an intrusive government beholden to big pharma dicating your medical decisions. Be a slave if you wish, but I want no part of it.
  • Jophus · 7 months ago
    What if the parents felt that locking their little girl in a closet for weeks is a medical decision because they don't want her to get pregnant when she is on her period?

    The state definitely has a right to step in when one persons actions endangers a child. I completely agree with you about adults all the way down to assisted suicide. You know how many crazy people are raising kids?

    Think of that photo of the woman holding the gun to the back of her childs head in the shooting range that john posted a while back. There are tons of people who are bipolar, depressed, manic, etc and you do not give them carte blanche when it comes to a childs welfare.

    Think about what you are saying a little more, because it just seems like you're focused on ron paul sytled freedom. Its evident that you are intelligent. This isn't about liberty though. It is about the lives of innocent children.
  • tbhull · 7 months ago
    I thought about before i posted and my opinion remains the same. This is both about liberty and a life of an innocent child.

    Like I said before liberty has consequences, which in this case include a child that has parents making a poor life impacting decision. These types of decisions are made by parents, some crazy and some not, every day without state intervention. Letting parents do their work, however poor, is natural. This is darwinism in a way. The alternative is allowing the state to intervene in these matters and that is a poor alternative and requires freedom to be tossed away.

    Your example of locking a child in a closet is easy to distinguish. Locking a child in a closet for weeks is an affirmative act that amounts to abuse and the state an step in there. Here, the parents are refraining from acting and that is their choice.

    Maybe you need to think about the ramifications and consequences of the world where the state can make a child's medical decisions that are contrary toby Pfizer. Imagine a corrupt bureaucrat telling parents that their child should take drug A made by drug company B or even drug test to detect that the correct drugs are being given at home.e dictate what an anithema slavery. This almost hapended in Texas when the Governor was going to require children to take the HPV innoculation by executive while at the same time receiving big $$$ from the vaccine's makers. Will parents be imprisoned for taking their children to other countries for alternative treatment against the wishes of government? The list of horribles could go on forever.

    The simple point is parents are best equipped to make decisions for their kid not the state. I do not know where Ron Paul stands on this and I really do not give a shit. We have survived as a nation quite well with the government intruding into the home like this and I want to live in a country that respects its written guarantees of livberty enough to keep it that way. If you think the state can coddle and nurture society to nirvana go ahead. I just think freedom requires that the state must have a limited role, a very limited role, a role that does not invade into the home and trump parents raising their children and forcing drugs and treatments upon a child when the parents disagree.
  • Jophus · 7 months ago
    I think I see a few things that we don't understand each other on here. I don't think the government should have absolute authority. I think it should be the parents decision too, but if there is an individual case where a doctor see's that a parent is choosing to let their child die needlessly then that doctor should have the right to challenge their authority in court. Not some sort of general mandate that says it is always up to the doctors, but in this specific scenario. Imagine being a doctor having made the oath to do no harm, you get attached to a kid, and you see that the parents are either neglectful or ignorant to the point of death. He should have that right. Just like people can challenge their right for gaurdianship in court outside of the hospital. You are sacrificing a child's freedom for the sake of the parents.

    "The simple point is parents are best equipped to make decisions for their kid not the state." My simple point is, there needs to be a big red button for someone to push for children like there is for adults (You can challenge power of attorney for adults in this situation) if something is going terribly wrong. We need failsafes and regulations. This same argument used towards capitalism is dangerous. There needs to be a right for someone to say hey, this needs to be reviewed because it is potentially dangerous. in my humble opinion at least.

    i like that you are civil btw. thanks for that.
  • tbhull · 7 months ago
    I have no problem with some court procedure that gets the kid on the stand to see what the kid wants, but the state cannot and should not speak for the child. The child can speak for himself/herself and the court can determine if the child desires to receive treatment contrary to the parents' desires. If the child does not then so be it. Of course, children of very young age cannot articulate what they want and in these cases the parents get to make these choices, not the state.

    I have no illusions that parents always act in the best interests of their children, but I accept this fact knowing that the state is even worse in these matters on a whole. The state is hopelessly corrupt and misguided. You fool yourself if you think the state will always act in the child's best interests.
  • hector · 7 months ago
    I bet the parents are pro-lifers
  • Robert Phillips · 7 months ago
    All of you are jumping on the parents because they used the word religion. My belief is that doctors don't know what causes or cures cancer. If you actually step back and look they are using people as guinea pigs in cancer research. They are not sure they can save this kid. And they refuse to do any research into alternative medicines. I do agree that the decision should be left up to the kid. But getting courts involved and child protective services is stupid. They should have more important things to do.
  • DavidinPS · 7 months ago
    What? Like protect children?
  • flounder · 7 months ago
    I had Hodgkin's as a child, age 13, in the 1980's. It is THE cancer with a very good survival rate. I haven't had any problems since my treatment, and it sounds very similar to this kids.
    There is nothing experimental to his treatment, and it is very dangerous for people like you who don't know what the hell they are talking about to imply that there is. Maybe you should stick to opining about things you know a little about.
  • Bette Porter · 7 months ago
    You are right that there are a lot of gray areas with what causes and cures cancer. And unfortunately, human trials are the primary way new drugs are tested to see if they work. However, at least in my experience with my partner, doctors are gaining a much greater understanding of how to target and kill the cancer cells. In breast cancer, drugs like Herceptin, for example, are re-writing history for women who just 10 years ago were handed a death sentence at diagnosis.

    My beef with parents has nothing to do with their religious beliefs. They may be very sincere. I just believe that this kid deserves a chance to live. Since he is a minor, the state has no choice but to intervene.
  • Charon · 7 months ago
    They've done plenty of research into "alternative" medicine. It's all crap, except perhaps a few herbs with actual active chemicals, that then become normal medicine.

    You "believe" doctors don't know about cancer? Based on your super-special believiness powers? And let me guess, no actual study?
  • ndtovent · 7 months ago
    However, with Hodgkins, the scientific/medical communities KNOW for a fact that it has a very high cure rate. So his chances of being cured are very high as compared to other conditions which have very low cure rates. If his parents are so brainwashed that they can't see the forrest for the trees, then the state has an obligation to try and save the boy.
  • Butch1 · 7 months ago
    Sorry, you feel the need to dismiss medicine over religion. I don't know if you have any training in the medical arts or not to give you the opinion that doctors do not know what causes or cures cancer. You are wrong on both accounts.

    A 90% cure rate is a figure not pulled out of their arse but through research, yes, animal testing, and developing medicines. I choose that over the religious verson of just praying to an imaginary sky fairy to make things right.

    You are also incorrect about doing research in alternative medicines. Phycopharmaceutials are constantly being tested for cancer curing properties as well as the treatment for certain diseases. I'm not sure where you are getting your disinformation or whether you just made it up, but this child needs the accepted appropriate therapy to cure his disease. A 90% success cure figure is much better odds than a 50/50 chance that the imaginary god will be listening at all. Sorry, but that is my reality and I trust that over "booga-booga" rantings, passing the decision of whether this child is to live or die off to an imaginary figure or just leaving it up to chance.
  • bebacker · 7 months ago
    of course you understand that animal "testing" provides zero scientific results, right? I'm just guessing that you have looked into the science and just said that as an after thought to folks who have not looked into the actual science and found out how dangerous this "testing" is for humans. I am sure you know about all the fake science behind it that allows drugs like vioxx to be unleashed onto our fathers, mothers, brothers and sisters.
  • Butch1 · 7 months ago
    Of course, you would be wrong. Animal testing has given us much knowledge on how certain drugs will work when applied in vivo, after the testing of animals, on humans.

    Your guessing is quite incorrect as well. I have a medical background (retired) and have first hand knowledge. Perhaps, if you actually did some reading you might locate the information you are sorely lacking on this subject.

    The reason we test animals is so we make sure the drugs used on humans are the safest possible before dispensing them to humans. Every patient that tries an experimental therapy is given all the information needed about the drug, how it will be applied, and the expected results, side affects, etc. Generally, they will not know if they are receiving a placebo, or the actual medicine. These are never forced upon a patient and the patient can always stop a study when ever they want. After a period of time in a study and if the patient was receiving a placebo, they would be given the actual drug and check for changes in the patient, tumor size changes, and an host of other information gained from the study. Much is learned from these studies, but to call all human studies, dangerous and that they shouldn't be happening at all, is disengenuous. Why bring up vioxx to muddy the waters of this subject? It has nothing to do with this subject. I'm surprised you didn't bring up Thalidomite, the sedative that was found unfortunately too late for some, to bring harm to the fetus during the first trimester of its life? Do you condemn medicine in general because unintended circumstances can happen? Perhaps, if more testing upon animals was done with this drug, the deformities would not of occurred. I certainly do not know the answer to that but to suggest it is all "fake science" tells me more about your lack of knowledge in this area and that it is your opinion and not based on any sound knowledge.
  • devlzadvocate · 7 months ago
    You are just plain wrong about what is known about the causes and cures of cancer. Some cancers are curable and their causes are well known. Every day we learn more.

    Of coure nobody knows who can be saved in ANY life-threatening because unexpected situations arise, but what is important are chances of survival vs. risk of death. If you want to view that as being a guinea pig, that's your choice. I view it as a chance to LIVE.

    Give the kid that chance. He may have the chance for a full, productive, happy life.
  • SkippyFlipjack · 7 months ago
    It's funny how misguided this post is. Child protective services "should have more important things to do"? Than try to protect children? You're sort of right, on a certain level doctors don't actually understand what causes cancer. However, they do have great success treating most kinds of it. Mortality rates from cancer have gone down, often dramatically, over the past five, 10, 30 years. Do you think that's just coincidence?
  • Lynn Dee · 7 months ago
    I side with the Court. The kid is not a piece of chattel that the parents can do with as they wish.

    My only reservations have to do with how do you decide when our experts are right, and when it's a toss up? It's a case by case call, I guess. But this one doesn't even appear to be close.
  • Andrew Christian · 7 months ago
    Yes, religious beliefs are no defense for allowing your child to die.

    If, for instance, you had a situation where the doctors gave the child a 40% chance of living past two years with no treatment at all, compared with just a 55% chance of doing so with a year of chemo, it would be understandable and reasonable for the parents to decline the chemo. A year of sickness and misery to raise the chance of two-year survival by only 15%? I'd let the parents decide in that situation, because they're honestly weighing the options given them by the doctors.

    In this situation, though, you have a boy whose tumor responded positively to the chemo, the doctors give him a 90% chance of full recovery with chemo but 5% without, and the parents just say NO!! because of their "religious beliefs." They aren't being reasonable or weighing the options fairly, but wholly rejecting what the oncologists say because of the ancient wisdom handed down by a convicted fraudster in the 90s.

    I don't care how miserable the chemo might be, if the difference according to the oncologist is from a 5% chance of surviving to a 90% chance, you go for it, and if you as the parent refuse, you're guilty of medical neglect.
  • Dianne_in_DC · 7 months ago
    I was recently treated for stage 1 breast cancer. I had radiation treatment which ended in Feb 2008, and from which I still have side effects. Despite that, it is the standard protocal for treatment and I would not make a different descision. Although I would side with the state, what I would opt for is educating the parents and trying to convince them that this is the right route. Introducing them to other parents who have made the same decision for their kids.
  • FastAndBulbous · 7 months ago
    John:
    Should a 50 year-old Jehovah's witness be forced to receive a transfusion against her wishes when it is clear she has a sincere belief that it would be a violation of religious beliefs that pre-dated the illness which the transfusion is intended to treat? No.

    Should a 13 year-old kid get chemo for a highly-treatable cancer, against the wishes of his parents, who only upon their "religious convictions" while their child was ill and who are being advised by a 'spiritual leader' who advises for pay, and who has been convicted of fraud in two states?
    Yes.
  • Butch1 · 7 months ago
    Putting this boy's life in the hands of religious witch-doctors, and the parents who follow them, and other imaginary religious idols to "cure" him is ridiculous. The parents can always say that it was "God's will." when the boy dies from not being treated for this disease or he didn't pray hard enough to win god's favor. This is outrageous!

    It needs to be taken out of their controlling hands and put into a competent oncologist physician's hands and issue the proper treatment. This is curable. Though, the parents are responsible for the boy's health and life, they are practicing their own religion upon him and limiting his options for life. If they want to deny medicine and treatment to their own lives, that's fine. This boy is not old enough to make an intelligent health decision and needs protection in his corner. If they want to trust their "own" health to imaginary sky gods, that's their own business. He needs to be able to make that same decision without their sentence of death, if he wants to live.
  • postdamnit · 7 months ago
    Yes! When a child is virtually given a death sentence because the parents believe in nonsense then the state has a responsibility to step in. Praying is not going to cure anyone, as has been demonstrated repeatedly.

    If an adult wishes to refuse treatment for a potential life threatening disease then fine. Go for it. But children need to be protected from idiots, even if those idiots are their parents.
  • FastAndBulbous · 7 months ago
    Folks:

    The details of this case matter.

    The child is home-schooled and at age 13 cannot read. He is incapable of making a sound decision about anything beyond his personal experience. Unless he has a cognitive issue, the fact that his parents allowed him to reach this age without learning to read demonstrates their incompetence as parents.
  • Joelle · 7 months ago
    Why does child protection need to have custody of this kid in order to get this worked out? The parents, crazy as they are, almost certainly love their kid a lot, and it can't be good to drag a sick kid away from his parents and place him in a system that does the best that it can but is seriously flawed.

    Can the judge issue a court order ordering the parents to take the child to treatment? And then if they violate the order, things can escalate from there? Has this already happened? I don't understand why CPS needs custody of this child in order for the child to get treatment.
  • FastAndBulbous · 7 months ago
    From the article:

    "The judge allowed Daniel to stay with his parents, noting they love him and acted in good faith, but he gave them until Tuesday to get an updated chest X-ray and select an oncologist.
    [...]
    If chemotherapy is ordered and the family refuses, the judge said, Daniel will be placed in temporary custody."

    In other words, the judge ordered exactly what you want.
  • steven2 · 7 months ago
    I side with the parents. Chemo is much less successful and harmful to the immune system than the medical authorities state. There are much better alternative cancer treatments available if you take the effort to learn about them. My family already knows that should I get cancer, I will not take chemo, radiation or surgery and will use alternative methods.
  • FastAndBulbous · 7 months ago
    And, since you are undoubtedly a 13-yr old boy who cannot read, your situation is precisely analogous to this one.
  • ndtovent · 7 months ago
    Thats fine for you. Obviously, you're old enough to make that decision for yourself, and I would respect your decision, but a 13 y/o kid isn't, and since Hodgkins has a very high cure rate (a known fact from many years of medical reasearch and survival rates of treatment experienced paitents), the state should absolutely intervene on behalf of the boy in this case.
  • Butch1 · 7 months ago
    That is your choice as an adult. We are dealing with a child and parents who seem to be unable to make an health decision for their child other than refusing treatment and just putting it all in "god's hands."
  • steven2 · 7 months ago
    I am not talking about putting anything in Gods hands. I am talking about treating the cancer using alternative treatment methods. Knowing as I do that there are MUCH better alternative treatments available, I would also want those better treatments for my child. Why do you think a child of 13 cannot also make an inteligent decision based on investigating the subject?
    I am not saying this to be a personal attack but you do appear to be phobic on the religious issue. I do not view this as a religeous issue at all. Just trying to do what is best for your child. Also, realize that the news report is biased towards conventional medicine.
  • DavidinPS · 7 months ago
    Knowing as you do that "there are much better alternative treatments available", would you please let us know what has a better than 90% cure rate fro Hodgkin's Lymphoma?

    Could you please point us to published, peer reviewed articles from respected medical journals that spell out these altenative treatments?

    I am not interested in anecdotes or "oogum-boogum" doublespeak.

    Name the treatment that has been successfully proven to cure this cancer at a higher rate than 90%.
  • Peter · 7 months ago
    Wow, this must be my lucky day! I was diagnosed with B-cell non-Hodgkin's lymphoma last Thursday. Please let me know about the "MUCH better alternative treatments" that are available.
  • SkippyFlipjack · 7 months ago
    According to the judge, the child thinks he's not ill. That's why he can't make an intelligent decision about the subject.
  • Butch1 · 7 months ago
    My understanding is that the parents are using religious reasons for stopping his chemo therapy. I think this is foolish in light of the fact that the cure rate for this disease is at 90%. There is a good reason this case ended up in the court's hands. I am not phobic on the religious issue as I am an atheist. Something of which I do not believe, would not scare me in the least. I do get angry when people would rather sacrifice their son to what is obvious to me as a superstition and leaving it for "god to decide." If they want to do that with their own lives, fine, but they are sealing the fate of a 13 yr old child. You mentioned why I didn't think a 13 yr old could make an intelligent decision, and I recall another entry where the person said that the boy was "homeschooled" and was illiterate and unable to write at the age of 13. If this is true, that should give you an answer as to why it shouldn't be left entirely up to the child. Furthermore, the child has been brainwashed for 13 years by his parents. I wouldn't expect him to be able to be objective about his own health.

    You suggest that doctors play down the effects of chemo tx. which is incorrect. Patients are always told the risks of using certain medicines and what the effects of using them can be. Patients go into this treatment plan knowing what to expect and there are no surprises. The statistics are also given to them as to the prognosis and what to expect with that as well. Otherwise, there would be more law suits against physicians for not giving all the information available or misleading the patients. Yes, chemo tx is very hard on the body; it is killing the cancerous cells and the body doesn't get a pass on side effects that affect other cells and systems.

    For this boy's therapy, and this certain type of cancer, it has a 90% success rate. What types of "much better" alternative therapy(s) would you suggest to treat this specific type of cancer? What are the success rates for the alternative therapies you would suggest? Are there any studies, e.g. blind, double-blind studies, that suggest that these therapies are better than the present conventional therapies used in allopathic treatments that you think are superior? I'm not mocking you, I am actually curious as to why these treatments are never mentioned. If there are any studies, kindly mention them so I may have a look at the data as well.
  • DavidinPS · 7 months ago
    Anybody else notice the deafening silence in response to the pleas to name the superior treatment?
  • Butch1 · 7 months ago
    The word "cancer" is such a generic name for an host of diseases that can be life threatening. I am suspicious of a phrase that claims "alternative therapy will cure cancer better than allopathic therapy. What type of cancer are we talking about, and certain cancers have better prognosis than others. One "catch all" treatment or therapy cures cancer is not how this works by a long shot. You are correct, there still is no response as to studies, what therapy(s) are used, etc. Just the statement that it does.
  • Peter · 7 months ago
    No doubt. I visit an oncologist Monday afternoon to discuss treatment for lymphoma. I'd sure like to know the superior treatments going in...
  • Jophus · 7 months ago
    His issue is with the FDA, and rightfully so. However, he thinks that somehow the doctors are corrupt which they are not.

    No one in their right mind could sit there and watch this situation unfold in real life, w/o trying to talk the parents into it, and then finally going to court. Not even this person you're arguing with.
  • Caleb Becker · 7 months ago
    I tend to side against religion, not that I think that religious beliefs are bad, just that organized religion just happens to be the bane of our existence. However, people are free to believe as they see fit in this great country of ours, so who are we or the state to say different if they wish to thin the herd a bit. Callous sounding I know, its a child and all, but you'd be just as miffed if the situation was reversed and it was your beliefs that were being questiond by the state.

    I believe that someday in the not to distant future, the grasp that organized religions have on people will finally end. Then we can all be free to be spiritual or worship as we see fit in our own lives. The way it should be. Until then, let the loonies help loosen that grip in any wacky way they see fit. Its stories exactly like this one that will help bring about the end of "religioius" organizations dictating how they think we should live.
  • 22state · 7 months ago
    Parents.

    Intellectually "slippery slope" arguments seem disingenuous. However, in "life" and medical decision areas, human nature has proven that any form of busy-body intervention is dangerous. There are cases of court forced C-sections, of court forced maternal medication, of court forced end of life issues.

    Hypothetical - 2 year old with cancer diagnosed with a 20% survival rate (confirmed by independent 2nd opinion). Child hates and has poor tolerance for the treatments. Can the parents ethically stop torturing their child in the remote hope of a cure? Will the Government hold that screaming child and comfort him in the night?

    For some sane discussion (recognizing the tensions and the issues involved in a true debate) see here
  • ndtovent · 7 months ago
    I don't think that this case is on that slick of a slope. It is obvious to me what the outcome should be.
  • 22state · 7 months ago
    And obvious to me too.

    But I'm not the parent. Or the kid. Or the family.

    As a society, we should routinely provide the tools for every child to make a life for itself (education, health care, basic subsistence). But to intervene in family life - broadly defined - there should be REALLY desperate circumstances. The deliberate, educated, decision to forgo medical care without evidence of it being in the nature of an intent to punish or harm or kill the child is not desperate enough for me.

    I really don't want forced infant creches - but wouldn't that be better for so many children who would get the nutrition and education they lack at home?

    I think that local education with all of its pitfalls is better than a national plan - but wouldn't a national curriculum teaching to the (sophisticated) test be better for so many of our failing school systems?

    You get the idea.

    I'm for freedom - even the freedom to make a mistake. The issue here is whether it's my opinion that it's mistake or whether it is objectively a deliberate attack against the child. Here the evidence seems to indicate that it's a matter of my opinion. So parents win.
  • An_American_Karol · 7 months ago
    It's not the child's mistake, and it's not the parents who will die.
  • 22state · 7 months ago
    Realize that what you are talking about is evaluating all seriously ill kids for foster care.

    How do you identify whether an ill child might not get the care YOU think is proper? Just like for the pediatric ER cases like broken bones, bruises etc... there would need to be a cancer protocol that evaluated parental decisions against a standard of care. Then, if the parents didn't agree with the standard of care, the child would be removed and forcibly medicated. Hmmm. When you look at the reality of what you're suggesting, not so easy.

    Having been a CASA (court appointed special advocate) and having read the whole uncensored file of at least 6 foster care cases - probably closer to 15 - I see a real need for community intervention in desperate cases. But, I also see how lame, impersonal intervention results in so much extra pain for the kids.

    The problem is that anecdotes and the current peer reviewed studies (which all agree need more research) seem to confirm that the worst part of foster care is the lack of continuous intimate personal interaction - i.e. family life. Material lack, desperate economic circumstances, neglect, even medium serious physical abuse seems to be better tolerated by kids than abandonment or serial attachments. Removing kids with deadly illnesses to forcibly medicate them is not a good answer.
  • fumon · 7 months ago
    When I was in college, I had an old, single, bitter woman (my own opinions, but then, I didn't like her) who taught Photography. She'd often berate students for not being as "smart" as she was. One day in class she made the statement that all disease was the fault of the person who had it. The person sitting next to me raised her hand and said, "Even a six-month old baby with cancer?"

    The teacher changed the subject and went on with class. Why didn't she answer? Because the person who raised her hand had only half a face - the other half was blank, grafted skin and scar tissue. It was obvious that she was talking about herself. And while the teacher had some great theories, they didn't stand up to reality...
  • Scottsdalian · 7 months ago
    22State - you are a fucking moron who dresses yourself up with lots of fancy-sounding sentances that end up saying jack-shit. You exposed yourself as full of shit when you wrote:

    As a society, we should routinely provide the tools for every child to make a life for itself....

    That's right - you called a child an "IT". Based on this simple revelation of yourself, you invalidate every "intelligent" argument that you think you made and reveal yourself to be a fucking moron.

    And then you state as part of your "professional qualifications" the following:

    Having been a CASA (court appointed special advocate)....

    Even the worst CASA in the world would never call a child an "IT"...other than you, obviously.

    So STFU.
  • 22state · 7 months ago
    Apparently, either common usage of the English language is beyond you or you believe that achieving person-hood is dependent on gender.

    The word "itself" is "[t]he neuter reciprocal pronoun of It" and the second (of 12 definitions of it is "(used to represent a person or animal understood, previously mentioned, or about to be mentioned whose gender is unknown or disregarded)."

    I believe all children should be provided the tools to enable themselves to make their own lives. This is a wholly encompassing statement that covers all children regardless of gender or gender identity.
  • marblex · 7 months ago
    Parents parents parents. Always favor local government over national.

    They used to burn witches for providing herbal remedies when the church ran things. It's just as wrong now to insist that medicine is the only appropriate treatment for illness, when medicine can no more produce a guaranteed result than prayer can.

    Time to get government out of our lives for good. Enough already. Its members have proven their fealty to big industry (including, here, big pharma) and not to the people of this country.

    Fuck them. Do as you like and be done with it.
  • An_American_Karol · 7 months ago
    As soon as we require an IQ test prior to reproducing I might agree with you, but as it stands now, anyone with operational reproductive organs can have a baby. That does not make them logical enough to make informed decisions on the best interests of their children.
  • ndtovent · 7 months ago
    How about combining alternative therapies WITH traditional medicine as a compliment? I don't think the state ruled against alternative therapies.. Only the parents' denial of chemotherapy for the child. They could still explore alternative therapies to compliment traditional treatments. While I don't like many aspects of 'big brother' watching us, I disagree with you in this case.
  • Badger3k · 7 months ago
    Problem is, there aren't any "alternative therapies" - there is medicine that works, and there is folk mythology that pretends to work while having no evidence that it does, and all available evidence that it does not. Unless the kid has a spontanteous remission while taking his pretend treatment (which is always a rare possibility), this is a death sentence.

    The question really boils down to "do we have the right, as a country and a civilization, to keep parents from killing their children?"
  • ndtovent · 7 months ago
    True... But there are alternative therapies that, while not cures, can stimulate/boost the immune system which would make the patient stronger and more resilient to the disease and the side effects from treatments, etc. I see those as complimentary, not as the primary treatment (IF the treatments are supervised by a good, knowledgeable herbalist/nutritionist, given in the correct combinations/dosages, etc.)
  • steven2 · 7 months ago
    Re your comment: "Problem is, there aren't any "alternative therapies".
    What is the basis for your statement? I have spent the last year investigating alternative treatments for cancer and have found a number that have much better results than chemo and radiation without destroying the immune system as chemo does.
    Chemo and radiation IS a death sentence but just delayed with a poor quality of life while waiting for death. Alternative methods can actually reverse and cure cancer.
  • DavidinPS · 7 months ago
    Have these treatments been thoroughly tested, published and peer reviewed?
    You talk about results. What results? What studies? Have they been replicated? I swear, some of you on this board don't have a clue what it takes to tell whether something is an effective treatment. But you've been investigating for a whole year, so you must have it nailed.
    And no, chemo is not a death sentence. Ask the people who have been cured by it. I don't think you need to go further than this board.
  • steven2 · 7 months ago
    I have communicated directly with the users. I think that is as direct a source as you can get. There are studies for some but I think you don't understand the meaning of the term alternative medicine. It wouldn't be an alternative medicine if it had gone through the FDA approval process.
    If you looked at the government statistics on the success of chemo, radiation and surgery you would find a 2% success rate with a successful cure defined as the patient living an additional 5 years, It does not address actual elimination of the cancer or a return of cancer after the treatments.
    Yes, some are treated ok by conventional medicine, 2%, and some of them attest to that here but the 98% who were not helped cannot post their results from the afterlife.
    Chemo does damage and often destroys the immune system causing multiple problems for the chemo patient often for the rest of their lives. If you really want to dabate this I suggest you learn something obout it first.
  • DavidinPS · 7 months ago
    A treatment does not have to go through the FDA to be studied, tested, peer reviewed and replicated. That is part of the scientific method. It is how we gather proof of efficacy. Any scientist, inside or outside the government can do it. What you call alternative medicine (which I completely understand, BTW) will still be alternative if it is subjected to the scientific process. We will just have a better idea of whether it actually works or not. It's fine if you want to talk to actually users and gather data. That is part of the process. The anecdotal part. But that is not the end of it. You need to do clinical studies to test what they say. For you to make a statement that there are alternate cures for non-hodgkins better than 90% and then offer nothing other than "I talked to users" indicates it is you who really needs to learn a little more about how effective cures are determined.
  • Jophus · 7 months ago
    Overall this guy is right about the FDA and its problems. Their are plenty of horrible things about the FDA that need looked at.

    He is projecting his problems with the FDA onto this individual child for the sake of argument. If he was there in real life, he would likely take the parents to court as well.
  • ndtovent · 7 months ago
    WRONG answer on the chemo for many forms of cancer nowadays. I went through treatments for Hodgkins 11 years ago, and I'm still here. And my quality of life has been just as good since treatment ended as it was before. It wasn't even that bad during treatment. I still worked, exercised, etc. and even gained weight because of some very good anti-nausea drugs. However, I agree that some alternatives could and should be used to compliment traditional treatments.
  • Joelle · 7 months ago
    As a Native American person myself, I would like to point out that the "religious belief" cited by these parents is in NO WAY NATIVE AMERICAN. These people are a bunch of pretenders with no legal authority or status as Native Americans. Just a bunch of white folks who have tried to co-opt legitimate Native American practices to make themselves sound "mystical." The website of this "religion" even admits as much:

    http://www.nemenhah.org/internal/due_dill.html
  • An_American_Karol · 7 months ago
    Joelle, I too am Native American, and I don't know one tribe that believes it can cure cancer with holistic medicine.
    Headaches, yes. Bee stinks and sore muscles, yes, cancer, no.
  • Joelle · 7 months ago
    I know! It's so exasperating. These New Age white folks who have finished raping Eastern medicine have moved on to Native American traditions now. I know nothing about Eastern medicine, but if these New Agers take on Eastern practices was anywhere near as wrong and bad and disrespectful as their current take on Native American healing practices, then I feel sincerely sorry for all the Asian people who had to put up with their ridiculous asses for all these years. The government needs to crack down on these impostors. We're so outnumbered and our communities are so threatened that phonies like this can do a great deal of harm. Anyone who is not a member of a recognized (federal or state) tribe has no authority to call themselves Native American. Period.
  • zeus · 7 months ago
    They start off saying: "... we do recognize that we live in a nation with its own laws that we ought to respect and uphold." But they don't believe the government has authority over the welfare of their children?

    Usual religious double-talk...
  • An_American_Karol · 7 months ago
    Jonathan Turley has his take in an unrelated case.
    http://jonathanturley.org/2008/03/26/11-year-ol...

    Personally, churches need to assume the responsibility for what they preach. Isn't it illegal to have poisonous snakes in church services these days?
    And, didn't a pastor from some little church go to jail for beating the children in his church - spare the rod, spoil the child?
    Maybe god will come to these preachers in a dream and tell them there has been a modification to the dogma if they are held responsible for what they spew while at the alter.
  • ndtovent · 7 months ago
    Jesus said more than once that there would be many false prohets to come in the Lord's name. We're seeing more of that today than ever before.
  • 22state · 7 months ago
    Oh. and P.S. to John:

    The siding with the kids thing. That's likely because you were, like me, a child who at a relatively young age (certainly by 13) was intellectually and developmentally able to make sophisticated choices for yourself and resented being told you were too young to do so. I used to HATE being told that I was too young to do X or to participate in Y event/discussion/plan. They were wrong.

    But not about every decision and not for every kid. If the child were advocating for or expressing a desire for different treatments - THEN I'd be for the kid. (So, I support programs that provide a secure environment to allow children past the age of reason (roughly 8 years old) to tell what they want for themselves - like in divorce custody or other cases).
  • Scottsdalian · 7 months ago
    The siding with the kids thing. That's likely because you were, like me, a child who at a relatively young age (certainly by 13) was intellectually and developmentally able to make sophisticated choices for yourself and resented being told you were too young to do so. I used to HATE being told that I was too young to do X or to participate in Y event/discussion/plan. They were wrong.

    Actually, 22state, based on all of your writings here.....they were RIGHT.

    And you weren't a "child" --- you were an "IT", as you defined above.
  • 22state · 7 months ago
    Repeated from below:

    Apparently, either common usage of the English language is beyond you or you believe that achieving person-hood is dependent on gender.

    The word "itself" is "[t]he neuter reciprocal pronoun of It" and the second (of 12 definitions of it is "(used to represent a person or animal understood, previously mentioned, or about to be mentioned whose gender is unknown or disregarded)."

    I believe all children should be provided the tools to enable themselves to make their own lives. This is a wholly encompassing statement that covers all children regardless of gender or gender identity.
  • bear · 7 months ago
    "hat's likely because you were, like me, a child who at a relatively young age (certainly by 13) was intellectually and developmentally able to make sophisticated choices for yourself and resented being told you were too young to do so."

    That reminds me of what happened when I asked my son if he understood what I'd just told him. He rolled his eyes and moaned: "DAD - I am FOUR!"

    We ALL think we know it all at every age - we're only limited by lack of vocabulary below age two...
  • dancinfool · 7 months ago
    This kid has Stage IV Hodgkin's Lymphoma, with a much more dire prognosis than Stages I-III. There's no way you can successfully treat it without chemo (and when my best friend presented with lung involvement, she underwent both chemo AND radiation.) The parents in this case are simply wrong. Unless they they are OK with watching their child die, of course.)
  • benb · 7 months ago
    Shouldn't part of the tumor be transplanted into the parents....so the 'Captain can do down with the ship'?

    'Evolution in Action' as we used to say; help it along.
  • Older_Wiser · 7 months ago
    It's child abuse in my book when a known procedure will halt this boy's disease and the parents prefer some kind of religious witch doctor treatment. To use "herbal medicine" in lieu of modern medicine is more experimental in most cases than not. Herbs are generally palliatives (and can be over-dosed and poisonous in themselves), not cures, in natural form, and would you eat foxglove instead of taking digitalis? Herbs processed into pill form have already lost a good amount of their potency.

    These parents are abandoning a known treatment which has already partially shrunk a tumor in the boy. To avoid further oncological treatment in lieu of some form of religiously mandated treatment unknown to cure cancer (since it's not practiced by a licensed scientist) is to sentence their son to death.

    I'll put my faith in scientific modern medicine to a large degree; in religion, no way. Remember, most modern religions were formed (they themselves say) from a guy who was willing to kill his own son because he heard voices.
  • ndtovent · 7 months ago
    I agree with you, there.

    Although, I firmly believe that one reason I survived Hodgkins was that I had so many people and groups of people praying for me. I always felt a strong, positive energy force around me the whole time I was going through treatment. However, I was an adult, more than old enough and cognizant enough to make that decision for myself. Religious beliefs should not be forced on anyone, especially when they interfere with a child's well being.
  • Older_Wiser · 7 months ago
    I'm glad you survived, truly. But it was because of modern medicine. Even the prayer didn't help--maybe those who said them got a bit of satisfaction as though they were doing something--but it was the loving concern of the people themselves that did the trick and you were aware of it.
  • MommaKat · 7 months ago
    hey Older_Wiser, there are scads of research studies over the course of 35 years that show that prayer and positive attitude do have a causative effect on health and healing. He may well have survived as a result of both treatment and prayer, and I find it odd that you would claim otherwise.
  • Blow Me, I'm Irish · 7 months ago
    For the love of Jeebus, people!

    Why hasn't anyone sent Bill Frist a videotape of this poor little guy?

    We'd sure know what to do then, right?
  • shell · 7 months ago
    Yeah, I side with the physician. With any other reason, I wouldn't. For example, I see no need to make a child's last days/months be a torture, when there is little hope. But if the parents are sure GOD will cure him, and esp. if, with treatment, there is an excellent chance of a cure, I say send the parents off to church and treat the child.
  • devlzadvocate · 7 months ago
    Parents ALWAYS provide the best environment for children.

    Take Nadia Sulemen for example. She is a lovely parenting role model.

    Sometimes parents just make wrong decisions, especially when the inject religion into every facet of life.

    You have to feed a child to keep him or her healthy. Why shouldn't you give the same child medical care that could save his life?
  • Buford · 7 months ago
    I side with the parents, as distasteful as that may be. Realistically, what would have happened if the state received custody... would they have literally 'forced' the chemo into this teen's body if he decided he believed as his parents did? That's no good.
  • slither · 7 months ago
    Why would that be "no good"?

    Let's look at the facts:
    -- He is 13, but CAN'T READ
    -- He doesn't think that he is sick
    -- He's been led to believe that chemo will kill him.

    He can't read! Either he is mentally retarded or his parents have severely neglected his education. If he is retarded, I would think the article would have mentioned it. If he wasn't, then I think right there that the parents are guilty of severe neglect. Either way, though, the kid certainly isn't able to make informed decisions.

    He doesn't think that he is sick! Even his parents know that he is. Why have they kept the truth from their child?

    So, either he is incapable of making an informed decision, or his parents have actively prevented him from doing so. Why should the parents be allowed to keep making decisions for him? And what is wrong with making sure that the best known medical advice is being followed until the kid is able to make his own choices?
  • shell · 7 months ago
    The problem with a rather small amount of Americans (but growing, I fear), is they insist on living in Jesus's time. Sounds weird, but it's true. If something wasn't around in Jesus's time, it doesn't exist. They even dress that way. The women all wear long dresses/skirts -- NEVER pants. That seems to be true of medicine, too. I have seen them act this way with their wimmin folk. So far, I haven't seen an adult male thumb his nose at modern medical treatment -- they probably just don't admit it. But they make their women act like this. And, of course, being GAY is the worse sin in the world -- you know, the BIBLE says it! (To them anyway.)

    They home school -- you see, what they would learn in a govt. school is WICKED. (One of their favorite words.) Anyway, go and check them out. But take a barf bag with you.

    http://www.fullquivermission.com/

    I feel these freaks should be visited by Child Protective Services.
  • John Nation · 7 months ago
    Jeebuz Christ! Those people are insane!!
    There's a discussion thread about a guy here in Ohio that's running for Senate as a Democrat on a platform based on killing gay people!!

    http://www.fullquivermission.com/forum/viewtopi...

    These people need to be stopped.
  • shell · 7 months ago
    I agree. I learned about them last year, when my brother's wife's niece actually married into this family. As I said, being gay is, I think, the second worse sin you can have. (After murder.) They also don't believe in birth control -- they are even worse than the Catholic Church -- the rhythm method is sinful, to them. To them, the more children you have, the more God loves you. Women who can't procreate are being punished by GOD.

    Bruce Murch, the founder of this freak show, still lives in his glory days, when he protested all the time, and finally received a judgment, ordering him to pay Planned Parenthood a large amount of money. As a result, he refuses to work, or his income would be garnished to pay PP.

    But what really frosts me is that this freak has minor children! He can do whatever nutjob thing he wants, but his children shouldn't be dragged along (And, BTW, his wife got cancer, the family treated it with herbs and other methods used in Jesus's time, while refusing a needed operation. The wife finally had the operation, but Bruce will NOT admit the operation (and doctor) cured her. It was just the wife's fault the Jesus cure didn't work.)

    And by the way, this affects all of us -- these weirdos do not believe in ANY vaccinations. (After all, Jesus didn't receive a polio shot.) At some point, they are going to bring back polio and other diseases to this country that were wiped out.
  • bear · 7 months ago
    I think their motto says it all: "But we are still out there!"

    Man, are they ever "out there"...
  • vkobaya · 7 months ago
    There are times like this when I think that not only the parents but the whole goddamn church should be tried and condemned to death if the kid dies. After all, it is in God's hands to choose and surely, he won't let a whole damn church die for believing in Him. This is bullshit. A 13 year old kid is not truly at the age of concent, is too strongly influenced by his parents both of whom would never make the same decision for themselves. Inject them with some of the kid's cancer cells and see whether or not they would then refuse treatment. The damn parents are just doing this for boasting rights in front of the other church members. May they burn in hell forever.
  • lilliannerose · 7 months ago
    I'm tired of children being treated like their parents OWN them.
  • zeus · 7 months ago
    But they do!

    (At least in our society, they do...)
  • Lauren1959 · 7 months ago
    I'm with you on this, depending on the success rate of the treatment, and possibly the age of the "child". Once you get into the 16 or 17 year range, I think they should at least have input.
  • Badger3k · 7 months ago
    The state - the parents, from what I hear, probably have a nice intention of keeping the kid from pain (the chemo), but they are delusional in thinking that him feeling better means that he is. The religion angle appears to be an excuse to cover the non-legal but still quite real desire to help their kid in one way, even while it will kill him in another. "Religious" exemptions that cause suffering or death should not be allowed in any circumstance - until they are adults and have the right to choose to die if they wish.

    The problem with the line you give "parents have the right to decide on the correct treatment" only applies if there are multiple correct treatments. What they have here is a treatment that works, and BS. The old line of "ignorance of the law is no excuse" can be restated here "ignorance of medicine and reality is not an excuse".
  • Gridlock · 7 months ago
    Why don't they ask the kid whether he wants to live or die.
  • ndtovent · 7 months ago
    No only is the kid pretty young, but ignorant. Home schooled, can't read, so probably has the intellectual reasoning/maturity of a much younger child. I go with the state on this one.
  • Heather Slater · 7 months ago
    If you are trying to insult homeschooling by proving your superior public schooled education you may want to do a quick grammar check. This article had nothing to do with home education. .
  • FastAndBulbous · 7 months ago
    Unless this kid has some sort of cognitive disability, the fact that at age 13 he cannot read has *everything* to do with his being home-schooled (by idiots). This does not mean that all autodidacts are illiterate, or that home-schooling by its nature is inferior. In this instance, however, the result speaks for itself.
  • ndtovent · 7 months ago
    No, I wasn't. I was referring to 'home schooling' for this particular kid by these particular parents, not home schooling in general. Obviously, these didn't do a very good job if the kid can't read at 13.
  • FatRat · 7 months ago
    Can't read at 13. The state has to step in.
    -----The judge wrote that Daniel has only a "rudimentary understanding at best of the risks and benefits of chemotherapy. ... he does not believe he is ill currently. The fact is that he is very ill currently."-----
    He lacks the knowledge that he is even ill. No doubt about it, the state has to step in.
  • devlzadvocate · 7 months ago
    Kind of depends on what the parents taught the kid to believe follows life. Does he even know what death means? Has he even been to a funeral? Seen a dead person?
  • jiminportlandoregon · 7 months ago
    John, you sound uncertain about your beliefs on this issue. I think I am a bit uncertain also, however, I am not sure the 13 year old boy has all the information he would need to make an informed decision. Also, if he does have the information, is he able to understand and comprehend the pros and cons? That is extremely important. If the parents truly have "religious beliefs" that prohibit them from doing anything medically possible to save their son, how do they then justify their undoubtedly pro life stand? Obviously, that is a rhetorical question, but the issue does puzzle me a great deal.
  • SkippyFlipjack · 7 months ago
    He obviously doesn't, in the opinion of the judge, who writes that the child doesn't feel sick so thinks he's not ill. If he thinks he's not ill, he's obviously not able to make an informed decision about chemo.
  • ShortWoman · 7 months ago
    Cases like this are why some states (Texas is one of them) have laws saying that parents cannot refuse medical treatment for their child for any reason, including religious beliefs.
  • ShortWoman · 7 months ago
    For that matter, if it's all because of religious beliefs, why did they do with the first treatment? Hypocrites.
  • fumon · 7 months ago
    The story (as posted) doesn't even say that the parents are religious, just that after witnessing the first treatment, they opted out of any followups. When pressed by the state, they gave the only defense that MIGHT be allowed "My religion forbides it".

    That said, they may be totally wonkers - but the evidence at hand doesn't support your statement. The question at hand wasn't "who wins - religion or the state?" The question was: "who wins - the parents or the state?"

    In my view, in this case, the state.
  • John Nation · 7 months ago
    If someone wants to believe in fairy tales, that's all well and good.
    But they cannot let said stories dictate whether a child lives or dies.
  • offspring · 7 months ago
    if it is right to rule over the parents, then why not go after any parent that smokes, i mean hell that causes cancer, why not make it illegal to smoke or drink around your kids, and if the state deams raising your kid as a member of the klan is abuse then take him away, and so on and so on, listen i am all for saving the kid, but the parents may be againts this just as some are against vacunations and some medication that they think will harm their kid. I have to say until we overstep the parent equally and on all grounds, the picking a choosing is right. either the parent has full rights to the life they made and brought into this world or the state does.
  • shell · 7 months ago
    It's not a "100% or nothing" deal.

    If it were, parents would have a right to kill their children -- after all, the kid is THEIRS, right? You might think this is hysteria, but denying the child life-saving medical treatment is just about the same.
  • catdance · 7 months ago
    If you saw your next door neighbor tying his son to a stone altar and getting ready to plunge a knife into him, claiming God told him to sacrifice his child, you wouldn't think, "Oh well, in the Old Testament God told Abraham to sacrifice Isaac, therefore this is okay." You'd step in -- you'd try to stop it, you'd call the police. We have all sorts of freedoms in this country, but we don't have the freedom to take a life.

    Andrea Yates wasn't freed because she claimed God told her to kill her children. She was found guilty of criminal murder, later retried and found guilty by reason of insanity -- even in Texas.

    These parents are no different. It is insane to kill someone because of the voices in your head, or in your minister's head. Maybe more so if it is your own child. This child is being condemned to death because his parents hear voices.
  • ndtovent · 7 months ago
    Do we think the same way about kids who are sexually or brutally, violently abused by parents? Letting a kid slowly die when there are treatments available with a 90% cure rate is a form of abuse, imho.
  • devlzadvocate · 7 months ago
    WTF? "full rights to the life they made . . " You are joking, right?
  • offspring · 7 months ago
    yes actually it was meant as a joke.
  • tacitus · 7 months ago
    This is nonsense. Your claiming that we have to have one extreme -- total parental rights -- or the other -- total state rights, which is ridiculous. Sure there are always going to be judgement calls, and some of them will be decided incorrectly, but that doesn't mean we can't get the vast majority of them correct.

    Take smoking, for example. Nobody's arguing to take a kid away if one of the parents smokes in the house, even though it is almost certainly detrimental to the kid's health. But if that parent was deliberately breathing smoke into the kid's face every day, then that is child abuse, and the parent must be told to stop or risk losing the kid.

    The parent never has full rights over the life of the child, because the rights of the child must also be considered. If the parents are refusing a treatment for the kid that will almost certainly cure him, then the child's rights must be protected by the state period.

    There will always be borderline cases, but the solution is never to take an absolutist position one way or another. We all have brains and reasoning abilities, and we need to be able to use them to decide such cases on their merits.
  • Benjamin Franklin · 7 months ago
    Why not go after any parent that smokes?

    Simple. Because if a child lives with a parent that smokes, there is no evidence that the child has only a 5% chance of surviving the next few months, or years, versus a 90 to 95% chance of living.

    The chemo might not be pleasant, but with it, Daniel has a 90 to 95% chance of living a full life. Without it, he will almost certainly die.

    You might also look further into the scam that is the Nemenhah Band, of which this misguided child is a Medicine Man, and elder, (Forming his religious basis of denial of sound medicine).

    You too can be a Nemenhah Medicine Man for the cost of $250 initially, and monthly donations as the Spirit guides you, (as taken from the Nemenhah Band website).
  • StampleinLA · 7 months ago
    Neither the Parents, nor the State. I side with the Child, and the Child deserves the best care available from a medical point of view. If the State can provide that, so be it.
  • samat711 · 7 months ago
    My sister was diagnosed with Hodgkins Lymphoma in 1963 before there was cure. Despite chemo and radiation she wasted away and died in 1965. The whole family was devastated and my father died 6 months later, partially as a result of this loss. All the alternative medicine practitioners I know would encourage their patients to avail themselves of allopathic remedies if needed. I have a dear friend who is into alternative medicine but when she was diagnosed with the same disease opted for modern treatments and has lived a happy productive life. Those parent are totally bonkers and acting extremely irresponsibly to let their child die if there is any cure available and At times like this an informed judiciary should step in.
  • Scottsdalian · 7 months ago
    All the alternative medicine practitioners I know would encourage their patients to avail themselves of allopathic remedies if needed.

    Well, duh, of COURSE they do -- it's their livlihood. Do you really expect them to say 'even tho this is what I do for a living, this is all bullshit'?????
  • gus · 7 months ago
    I think you misunderstood.
  • Ben Dover · 7 months ago
    From the article it appears that the parents "beliefs" do not allow them to be pro-life and provide adequately for their child.

    The parents are taking this "suffer the children" too far and the state must step in and apply sanity to the parents insanity.
  • kevinbgoode · 7 months ago
    Well, I'm confused. First, it wouldn't surprise me in the least if these parents chose a "religious" belief which also demands that the State control their definition of life in a woman's womb - but that the State must keep its hands off the lifegiving sperm that a man randomly chooses to discharge.

    Then this same "religious" belief, which parents somehow have the right to impose on minor children, can be used to put a child's life at great risk of impending death - and the State has no business protecting that life.
  • theonewhopullsthestrings · 7 months ago
    My thoughts on this issue is if the courts makes this issue and it is forced upon the parents then the state should take custody of the child, otherwise it's the parents decision.
    Also if this child gets the treatment ordered by the court and dies is the state then charged with murder.
  • James Guglielmino · 7 months ago
    Why take the child and add to parents' sadness over their child's illness? In this situation, you go, as you ALWAYS should go, with science. The best science has to offer by 90 points is chemo therapy, according to the blog. You force it. The kid will recover from the side effects of chemo therapy. He won't from the side effects of alternative therapy.
  • SCLiberal · 7 months ago
    I've heard author Gregg Braden talk about the Chinese medicineless hospitals and astounding success they have. In the West we are such supplicants to Medicine that we forget that is not the only choice people have. I don't know the particulars of this case but it makes me very uneasy to have the state usurp a parent's decisions. I can't help but think these people love their child as most parents do. I won't demonize them over a decision they have made that is contrary to the Western mode of thought.
    It is really a tough question and I don't envy the judge.
  • shane · 7 months ago
    The choice between "Western medicine" and "alternative medicine" is a false dichotomy. There are no "alternatives" to objective evidence of effectiveness and safety. It's not a choice between mutually exclusive, equally effective possibilities.

    Failure to treat this child is tantamount to child abuse and grotesque negligence.
  • SCLiberal · 7 months ago
    I've heard Gregg Braden talk about and present to audiences a video of a woman at one of these Chinese hospitals being cured of a bladder tumor. It took three minutes and one can see the tumor shrinking to nothing on a real time sonogram. When shown the video, Western doctors expressed fascination with it and said they would love to study it, but first they had to cure cancer.

    The western medicine I'm speaking of is a close-minded system dedicated to the chemical/pharmaceutical industry. It ignores the most powerful cure of all: the mind. From AIDS to cancer to sleep disorders, research is finally being conducted on methods of treatment that are alternatives to chemicals.

    I don't agree that there is a "false dichotomy" here. A video of a cure in progress seems pretty objective to me.
    My trust in western thought is not as strong as yours. I will continue to seek alternative modes of thought and approaches to problems such as cancer. Treatments are not either/or issues. The problem posed by the blog post is not a black and white issue either. As I said, I don't envy the judge.
  • DavidinPS · 7 months ago
    First, I simply don't believe your story about the Western doctor's response to this video "cure". It smacks of convenient nonsense. No serious researcher in the cure for cancer when faced with CREDIBLE, VERIFIED, and REPLICABLE clinical evidence would behave this way. The response you credit to them doesn't even make sense.
    Second, you define Western Medicine in the most negative terms. That's sort of stacking the deck, isn't it? Western medicine, to me is the one that developed protease inhibitors that saved countless of my friends, that developed the polio vaccine that probably saved my hide when I was a child, that developed penicillen which has saved millions and millions, and chemo therapy which has a 90% chance of saving this kid.
    Third, it IS a false dichotomy. We should be open to all ideas, eastern, western, northern or southern. Trying to harness the mind is cool too. But ultimately nothing matters other than proof--real proof-- that any of it works.
  • MommaKat · 7 months ago
    that is simply your opinion Shane. Western medicine nearly killed me because the chemotherapy I received was so toxic to my entire system, not just the cancer, which I understood had a very good cure rate. However, there was no quality of life with chemo, so I turned to alternative medicine. My doctors were stunned when my tumors shrank and I went into recession. Later, when I wanted to talk about having more children, they said it was impossible. Interesting, because I've had two more since going into recession, and still have a clean health record almost two decades later. It is NOT a false dichotomy, it is one some people choose not to acknowledge, and I respect their choice. That doesn't, however, give anyone the right to state it does not exist, or that alternative medicine is somehow inferior to our ineffective, magic-bullet, cure the symptom style western approach to medicine.
  • chris green · 7 months ago
    Not even a borderline case for me. Conventional cancer treatment in children has a very high cure rate, especially for his particular condition, and his chance of surviving without that treatment is low. Our laws don't allow parents to kill their children even if their religion makes them believe that they should.

    The story would be different if the ratio between the chance of survival treated and untreated were a closer such that someone with reasonable judgement could choose either way. Then I would want the courts to choose to let the parents exercise their judgment.
  • KISSman · 7 months ago
    I think these are difficult issues, but to me, it boils down to statistics. A minor who has a 90% chance of survival with chemo should have chemo. If there were only a 5% chance of survival, then I'd side with the parents since the chances of finding an alternative cure would have been about the same as the chemo working. But you can't not go with something that gives your child a 90% chance to live.
  • robish518 · 7 months ago
    "If there were only a 5% chance of survival, then I'd side with the parents since the chances of finding an alternative cure would have been about the same as the chemo working"

    I agree with your argument, but for a different reason; and I'd side with the state on this one. I think you have to look at the statistics and see that there's a 90% chance of surviving with the treatment and a 5% chance of surviving without it. The parents made their wrong decision and chose something where there child has less of a chance to survive.

    The state is doing the right thing here.
  • Brad · 7 months ago
    Medicine, mainstream or otherwise, is itself a priesthood people bow to out of blind mysticism.

    People must assume the active-minded authority to know what is really going on, to make the best decisions for themselves and their dependent children.
  • chiun · 7 months ago
    "People must assume the active-minded authority to know what is really going on, to make the best decisions for themselves and their dependent children."

    Only they didn't, hence the question...
  • Brad · 7 months ago
    I accept that you think they did not choose their course of action with active minds. However, the child's parents obviously disagree with you.
  • Ruttle · 7 months ago
    These "parents" are dangerous fools, who will likely kill their child if given the chance. They are criminals.
  • Brad · 7 months ago
    Any opinion on those who constitute The State?
  • Scottsdalian · 7 months ago
    So if Jesus whispers in my ear that I should drop my kid off a cliff and He may or may not catch my kid before he goes splat.....and then my kid goes SPLAT -- a few people here would argue that's OK.

    And not prosecutable...cause Jesus whispered in my ear!

    Religion is truly out of control these days.

    I have no earthly idea what the hell Jesus is thinking these days. Like - why does He always whisper into the ears of stupid people and why does He always tell stupid people to do stupid things???

    Does Jesus have issues cause he was tortured and murdered?

    Just askin.
  • bear · 7 months ago
    Love your comment - doesn't answer the question, but I still love your comment...
  • Scottsdalian · 7 months ago
    Wasn't really offered as an answer.

    It was just offered as an analogy for a similarly stupid situation that these parents are causing.

    I gave my answer to the question early in this thread.
  • Chiun Nuihc · 7 months ago
    "is that enough justification for the state to intervene?"

    the state doesn't NEED dany justification - the government holds the absolute right of life and death over each person under its control - period.

    Now, do I think that's right? No - but it is a fact. As for my opinion on forced medical treatment: it shouldn't happen unless not getting treatment puts others in danger. In this case, the parent's decision put the child in more danger than the state's decision. I'll have to go with the state on this one instance.
  • jc · 7 months ago
    If you are a hippy flower child conspiracy theorist then you probably believe the child will be cured by some beta glucan. I would go with the chemo--its nearly a guarantee in this particular case. Alternative medicines are not. I do believe in alternative meds...just not in super life threatening therapies that have a time table. As in this case...the gov should take the child away and get him treated.
  • tbhull · 7 months ago
    I would have no problem with the child having a say over the parents, but the government cannot speak for the child or make medical decisions requiring an affirmative act that are contrary to the parents' decisions.

    Freedom has consequences. However unfavorable one may view the consequences of freedom in letting the parents decide in this case, the outcome is nowhere the absolute horror of an intrusive government beholden to big pharma dicating your medical decisions. Be a slave if you wish, but I want no part of it.
  • catdance · 7 months ago
    uh oh... you KNEW there were Mormons involved someplace:

    "They were allegedly written upon plates of various metals, processed animal hides and paper velum. Allegedly, the records were archived in several locations in North and Central America anciently, with the only surviving copies of the histories of the Nemenhah being strictly guarded in the libraries at a non-disclosed location in Sanpete County, Utah. When the LDS church said they could not translate them another person eventually translated them into Spanish-related language. They were then translated into English and first published Nov. 11, 2004. (11/11)"
    http://www.greaterthings.com/Records/Nemenhah/i...
  • Older_Wiser · 7 months ago
    Well, the Mormons do believe in made up shit--like the "Nemenhah Tribe" of which "Chief Cloudpiler" opines at blog.nemenhah.org. "Chief Cloudpiler" is Philip R. Landis, a conman and, as I discovered at Findlaw, a convicted felon (Montana, 1999). Google his name, it should appear at the top of the page and you can click on Findlaw to read the appeal. Philip R. Landis evidently took advantage of Utah law which states a "tribe" can gain recognition by "declaration" which he obviously did to start this current scam. You just have to read the mumbo jumbo he spouts to justify this "tribe."

    These parents are deluded and should have done their homework on this thinly-veiled scam in which you can be "spiritually adopted" for $250 or whatever the "medicine man or woman" requests. Wonder how much they have lost on this? Wonder how much Philip R. Landis has made?

    Isn't it special that "another person eventually translated them into Spanish-related language"? Sounds so much like the scammer Joseph Smith. The Mormons continue the scam.
  • Aaron · 7 months ago
    Freedom is the freedom to make choices that I don't agree with. Freedom is not free. It has consequences. Consequences we might not like.
    Let the family make their own decisions.
  • MommaKat · 7 months ago
    thank you
  • wolfhound2 · 7 months ago
    Former oncology nurse here...the child should be treated. Not to treat is outrageous with this now so treatable disease.
  • Older_Wiser · 7 months ago
    BTW, in addition to the post below, further research just on Google also expose "James WFE Mooney" the "chief" of the nativeamericanchurch.net as having been prosecuted by the Feds several years ago; while a deal was reached, the Feds notably didn't return 30K of peyote buttons which Mooney has been accused of peddling for profit. Every member of this NAC is also alleged to be Caucasian. In addition, there was another case in Idaho where Landis was convicted of a felony in the same scam involving the growing of mushrooms by locals as in the Montana case.

    BTW, Philp R. Landis, or "Chief Cloudpiler" of the "Nemenhah" is a MORMON and I believe that James Mooney is as well. Is it any wonder that they turned in all those "ancient" writings to the Mormon Church? Being a Mormon in the first place, I'm sure Landis was just "lying for the Native Americans." You can find all of this stuff online; Landis even wrote a piece on the My Obama site, claiming to be a Rethug who was thinking of switching parties. True Native Americans have dismissed these people as charlatans who co-opted real NA natural healing into their version of profit making.

    There's also a piece from the StarTrib and at computernewbie.info/wheatdogg where Landis lamely tries to attack the allegations.
  • taodon · 7 months ago
    If I may be so crass, I side with the parents on this for two reasons:

    1. The parents should know best, in most cases, of how to properly care for their child.
    2. If they don't know best, and the child dies, at least their tainted genes won't be perpetuated and this ridiculous little cult will die out.
  • shell · 7 months ago
    No. 2 has a giant hole in it. What makes you assume there is only one child?

    And No. 1: Parents SHOULD know best? How about "Citizens SHOULD know not to rob banks? Should we just forget the law?
  • Rab · 7 months ago
    Also, this kid is home schooled and at the age of 13 can't read.
  • Deb · 7 months ago
    Those parents must be living in a fantasy world. My granddaughter died at the age of 13 because her parents made a similar choice. It nearly killed me. I guess they cannot imagine a world without their child. They better wake up.
  • MaryRC · 7 months ago
    This same sad situation was played out in Canada a decade ago. A 13-year-old boy named Tyrell Dueck had bone cancer and his doctors recommended chemo and amputation of one leg. He and his family refused the treatment. His father, a fundamentalist who believed in faith healing, said that prayer would heal Tyrell. His doctors took the family to court, where it was ultimately decided that Tyrell wasn't competent to make the decision to refuse treatment because he was influenced by his father. He was eventually ordered to resume chemotherapy but by then it was too late - the cancer had spread and any further treatment would be useless. His family had fallen into the hands of quacks who took him to a "clinic" in Tijuana where he was treated with apricot pits and shark cartilage. He died before his 14th birthday. The parents weren't prosecuted. Part of the resulting controversy in Canada was over the quacks and frauds who leeched onto the family (to the tune of hundreds of thousands of dollars raised by supporters) and whether they should be allowed to advertise alternative cancer therapies without regulation. But there's one aspect of the treatment that is different from this case - the proposed amputation of Tyrell's cancerous leg. I think any court or doctor would hesitate before they performed an amputation on an unwilling child without his parents' permission.